patients
To align the interests and priorities of the scientific community closer with the real needs of patients.
FOR PATIENTS
Tomorrow’s health depends on our participation today.
In recent years, the emergence of a new paradigm has been observed, reflecting the evolution of the role of patients and the public in care processes, shifting from being passive recipients of care to agents where the aim is for them to be empowered in their relationship with healthcare professionals, in order to establish a more equitable and collaborative model and move towards the ‘co-production’ of health.
For all these reasons, we encourage you to make your voice heard by becoming part of our Network.
Participation
Public participation has become firmly established as an element that adds value to research, its results and its impact, becoming an indispensable pillar of health research policies at national and European level.
Public participation in research activities is essential to achieve better tools for diagnosis, monitoring and treatment, especially when it comes to chronic conditions, where the management of the disease itself can play a key role in health outcomes and quality of life.
Adventages
This participation has several advantages:
Role of patients in RICAPPS
Patient education and their free, altruistic participation in the field of clinical research have become primary objectives for medicine to advance. Patients and/or lay members of the public are increasingly included in trial oversight committees, influenced by international patient and public involvement (PPI) initiatives to improve the quality and relevance of research. An educated, informed, and responsible patient regarding their illness is a patient with greater adherence and better health outcomes. Furthermore, patients, caregivers, and the general public alike can be fundamental actors in the ongoing development of research, leading to a better understanding of the disease and its treatments.
Royal Decree 1090/2015, which regulates clinical trials with medicinal products, Research Ethics Committees with medicinal products (CEIms), and the Spanish Clinical Studies Registry, incorporates the role of the patient into the CEIms. Thus, the aim is to foster knowledge generation and transparency.
Why participate?
Because you will be contributing to identifying new treatments that can improve the experience of everyone suffering from your condition. The ultimate goal of every scientific process is to promote the well-being of individuals; therefore, involving the general population is a “mutual benefit” with a common purpose: improving people’s quality of life.
How to participate?
As patients, you can take part in all stages of a research study: proposing the research idea, design, development of educational materials, participation in oversight committees (e.g., community advisory groups), interpretation of results, providing feedback on reports or manuscripts, presenting findings in peer forums, or even supporting the implementation of research results.
93 482 46 94
671 511 120
info@ricapps.es
