patients
OUR ADVISORY GROUP
There are many ways to involve patients and users of the healthcare system in service delivery, and one of them is to listen to their voices when designing and implementing research projects aimed at improving the experiences and outcomes of the care received. This is especially relevant in the management of chronic conditions, as a more empowered patient who is more involved in managing their condition is a patient with a better quality of life.
At RICAPPS we are actively working to set up our advisory group made up of representatives from the most active patient associations active nationwide, which serves as a channel for patients’ voices in order to systematically include their interests in the design and implementation of research projects.
Its members will be announced shortly!
Functions
To collaborate
on the dissemination of the Network’s activities and results at seminars, scientific outreach events, etc.
To act as a connection
to new patient associations to broaden the potential group of members of the public and users who could become involved in the various activities.
To promote
the involvement of patients in the Network’s activities, especially their participation in the design and implementation of research projects.
To review
the various dissemination materials, providing them with clearer language that connects better with the people they are aimed at.
Miembros Comité Asesor
Alberto Tortosa
Representative of the patient organization platform
Ricapps
Enric Soley Pérez
Patient and Lego CEI Aragón
Ricapps
Oscar Lopez de Briñas
Patient
RicappsJuantxo Remón
Presidency of the Spanish Diabetes Federation (FEDE)
RicappsLibertad Martínez
Managing Director, Spanish Federation of Acquired Brain Injury
RicappsMayte Gallego
President of the Association of People with Spinal Cord Injury and Other Physical Disabilities (ASPAYM)
Ricapps
Sara Heras Mathieu
Representative of the National Association of Pulmonary Hypertension
Ricapps
Graciela Rodriguez
Technical and Services Directorate of the Vizcaína Association of Families and People with Mental Illness (AVIFES)
Ricapps
Ana Fernández Marcos
Director of the Area of Participation of People with Cancer, Spanish Association Against Cancer
Ricapps
Bernard Gaspar
President of the Spanish Association of Lung Cancer Patients (AEACaP)
RicappsLola Ortega
Patient
RicappsMaria Jesús Tortosa
Psychologist and breast cancer patient
RicappsMiguel Angel Perea
Representative of the Sweet Dream Association
RicappsPaloma Gomez
Patient
RicappsNoelia Chacón
Patient
Ricapps
93 482 46 94
671 511 120
info@ricapps.es
