Target WP12 - Ricapps

The network

research programme

05

WP 12. To promote co-design, research and the implementation of strategies and interventions to improve health literacy and increase patients’ empowerment and autonomy.

Coordinator

Lilisbeth Perestelo

Canary Islands Research Group

RD21CIII/0003/0013

lilisbeth.peresteloperez@sescs.es

Participating Groups

AQUAS. IP:

Mireia Espallargues (RD21/0001/0007)

Canary Islands. IP:

Lilisbeth Perestelo (RD21/0001/0013)

F. Avedis Donabedian. IP:

Carola Orrego (RD21/0001/0028)

Galicia. IP:

Francisco Gude (RD21/0001/0022)

GRAP-caIB. IP:

Alfonso Leiva (RD21/0001/0009)

GRenSSAP. IP:

Anna Berenguera (RD21/0001/0029)

H. Costa del Sol. IP:

Maximino Redondo (RD21/0001/0015)

IMIM. IP:

María Sala (RD21/0001/0020)

ISCiii.

Joao Forjaz (RD21CIII/0003/0002)

Madrid. IP:

Isabel del Cura (RD21/0001/0027)

Research lines

Line 1 To characterise the experiences, needs and perspectives of the public/patients/carers in their care and self-care process, identifying patients’ preferences and the associated utilities, as well as other factors related to empowerment and autonomy (close collaboration with WP6, WP8 and WP14).

Task 1. To identify and analyse the experiences, needs, preferences and associated utilities from the perspective of the public/patients/carers during the diagnosis, treatment and follow-up of their illnesses, or when they seek to improve their well-being.

Task 2. To identify patient-relevant outcomes from the perspective of the public/patients and other stakeholders for the evaluation of PCC, SDM and self-management interventions.

Line 2 To develop methods to involve stakeholders in plans, strategies, evidence-based products (health technology evaluation reports, clinical practice guidelines, GDS tools) and in the identification and prioritisation of research and information needs in PHC (in close collaboration with WP10).

Task 1. The co-design and evaluation of strategies and methodological guidelines to facilitate the participation of patients/carers/the public, healthcare professionals and other stakeholders in health services research and the implementation of strategies, policies and interventions.

Task 2. The evaluation of the impact of stakeholder involvement on research processes, ethics and inclusion, stakeholder empowerment, the quality of the evidence and the acceptance of the products.

Line 3 To develop and evaluate strategies and interventions to promote the empowerment and self-care capacity of patients with chronic conditions in primary care, as well as the skills and resources of stakeholders (close collaboration with WP7, WP8, WP9, WP11 and WP13).

Task 1. To identify and co-design strategies and interventions for PHC and SDM aimed at patients/the public/carers and healthcare professionals.

Task 2. To evaluate the effectiveness and efficiency of the strategies and interventions that promote PCC and SDM in PHC and in care continuity processes.