Target WP12 - Ricapps

The network

research programme

05

WP 12. Promote the co-design, research and the implementation of strategies and interventions to improve health literacy, increase empowerment and autonomy of patients.

Coordinator

Lilisbeth Perestelo

Canary Islands Research Group

RD24/0005/0003

lilisbeth.peresteloperez@sescs.es

Participating Groups

Canary Islands. IP:

Lilisbeth Perestelo (RD24/0005/0003)

FAD. IP:

Carola Orrego (RD24/0005/0025)

Galicia. IP:

Francisco Gude (RD24/0005/0010)

Cardiocat. IP:

Rafel Ramos (RD24/0005/0001)

GAIAP-Aragón. IP:

Rosa Magallón (RD24/0005/0004)

H. Costa del Sol. IP:

Maximino Redondo (RD24/0005/0016)

IMIM. IP:

María Sala (RD24/0005/0002)

ISCiii. IP:

João Forjaz (RD24CIII/0001/0002)

Madrid. IP:

Isabel del Cura (RD24/0005/0015)

SAMSERAP. IP:

Juan Bellon (RD24/0005/0011)

EpiChron. IP:

Antonio Gimeno (RD24/0005/0013)

Biosistemak - OSI Barrualde-Galdakao. IP:

Susana García (RD24/0005/0020)

Biosistemak - OSI Bilbao-Basurto. IP:

Amaia Bilbao (RD24/0005/0019)

Research lines

Line 1 To characterize the experiences, needs and perspectives of citizens, patients and/or caregivers in their care and self-care process, identifying patients’ preferences and associated utilities, as well as other factors related to the empowerment and autonomy. This line has been developed in close collaboration with WP6, WP8 and WP14.

Task 1. To identify and analyse the experiences, needs, preferences and associated utilities from the perspective of the public/patients/carers during the diagnosis, treatment and follow-up of their illnesses, or when they seek to improve their well-being.

Task 2. To identify patient-relevant outcomes from the perspective of the public/patients and other stakeholders for the evaluation of PCC, SDM and self-management interventions.

Line 2 To develop methods to involve stakeholders in plans, strategies, evidence-based products (health technology assessment reports, clinical practice guidelines, SDM tools, health communication guide) and in the identification and prioritization of research and information needs in PHC. This line has been developed in close collaboration with WP10.

Task 1. Co-design and evaluation of strategies and methodological guidelines to facilitate the involvement of patients, caregivers, citizens, healthcare professionals, and other stakeholders in health services research and implementation of strategies, policies and interventions.

Task 2. Evaluation of the impact of stakeholder involvement on research processes, ethics and inclusiveness, stakeholder empowerment, quality of evidence and uptake of products.

Line 3 To develop and assess strategies and interventions to promote the empowerment and self-care capacity of chronic patients in PHC, as well as the skills and resources of stakeholders. This line has been developed in close collaboration with WP7, WP8, WP9, WP11 and WP13.

Task 1. To identify and co-design strategies and interventions for PCC and SDM aimed at patients, citizens, caregivers and healthcare professionals.

Task 2. To evaluate the effectiveness and efficiency of the strategies and interventions that promote PCC and SDM in PHC and in care continuity processes.